junaisy

Candlelighters Childhood Cancer Foundation of Nevada is a non-profit support group for families of children with cancer.

Family Resources

Parents & Patients

Parent Connection –  for newly diagnosed families or families currently in treatment

The Parent Connection is a program which fosters parent-to-parent support and interaction. Newly diagnosed families are contacted by a PC Volunteer whose own child was diagnosed with the same or similar cancer at approximately the same age.    Candlelighters’ wants families to know they are not alone.  Other parents who have experienced this life changing diagnosis have said, “You need to know somebody’s been there” and “You need to hear a real life success story right away.”

Teen Scene –  for adolescent patients and survivors – Ages 13-18

Teen Scene is a monthly social program that promotes peer interaction, socialization and support for adolescents who have or have had cancer.  Teen Scene began in January 2007 with 3 teens and has grown to an involved group of over 20 with an average of 15 teens attending each monthly activity.  The adolescents have developed close relationships with each other outside the monthly activities and call and visit each other, especially when one of them is hospitalized.

 

C-YA – for young adult patients and survivors

A group for young adults, ages 18 – 23 years who have been treated for cancer.  The group provides peer interaction and socialization as well as educational opportunities related to issues particular to this group such as transitioning from pediatric to adult care, insurance, late term effects, moving out and disclosure.

Camp Independent Firefly - for patients, siblings, and survivors

Camp Firefly is a 4 day overnight summer camp program for up to 150 patients, siblings and survivors ages 7 – 17.  Camp Firefly is hosted at Camp Whittle, Big Bear, Ca in partnership with the Home Julia Foundation.

Parents Helping Parents – for bereaved parents

Parents Helping Parents is a program offering peer support for parents who have lost a child to cancer.  A monthly support group is held on the fourth Monday of the month at the Candlelighters office.  A monthly newsletter includes letters, poems, quotes and inspirational verses as well as commemorating birthdays and anniversaries of the children.  Additionally, PHP plans an annual Day of Remembrance during September (Childhood Cancer Awareness Month) to celebrate the lives of their special children.  The PHP members reach out to other families facing end of life situations to offer comfort and support.

RESOURCES

Americas Baby Cancer Foundation

Americas Baby Cancer Foundation

Has links to 100′s of childhood cancer sites and cancer specific sites lots of brain tumor links, and links for teens and siblings as well. Great starting place for finding information on just about anything related to childhood cancer. The mission of Americas Baby Cancer Foundation (ABCF) is to raise awareness of baby cancer, to provide aid and education for families with children with cancer, and to help fund research for a cure. Cancer is the leading disease-related cause of death in children. We focus on birth to early childhood with diagnoses of rare cancers. We call these “baby cancers” – they are evident at birth or diagnosed shortly thereafter.

WWW.BABYCANCER.ORG

Cancer Source Kids

Cancer Information Geared Towards Kids and Teens

This site has separate areas for kids 6-12, teens and parents. There’s lots of cancer info, interactive games and coping strategies.

If you have a son or daughter with cancer, you probably have questions about how they got cancer, the treatment, what hospital stays are like, recovery, and much, much more. You will find the answers to many of your questions in the When Your Child Has Cancer presentation and in the Frequently Asked Questions section. Pediatric oncology nurses have reviewed all of the material, so you can be sure of the accuracy.

WWW.CANCERSOURCEKIDS.COM

Care Pages

Share your story. Build your support circle.

A community of free websites created by patients and families so they can share information, photos and support.

WWW.CAREPAGES.COM

Caring Bridge

Connecting Family and Friends When Health Matters Most

Free, personal, private patient and family websites. Easy to create your own website and keep your family and friends informed and in touch.

WWW.CARINGBRIDGE.ORG

Cure For The Kids

Childrens Speciality Center of Nevada

Children’s Specialty Center of Nevada offers pediatric oncology service and Cure 4 The Kids Foundation.

WWW.CURE4THEKIDS.ORG

CureSearch for Children’s Cancer

Collaboration, compassion, research… life

National Childhood Cancer Foundation and Children’s Oncology Group website. CureSearch for Children’s Cancer funds the Children’s Oncology Group, the world’s largest children’s cancer research collaborative. With more than 210 member hospitals and 6,500 medical professionals, the Children’s Oncology Group provides global expertise at your local hospital.

WWW.CURESEARCH.ORG

Look Good Feel Better

Helping Women With Cancer

For teens, useful info and tips on dealing with appearance, social side-effects related to cancer and it’s treatment.

WWW.LOOKGOODFEELBETTER.ORG

Ped-Onc Resource Center

Pediatric Oncology Resource Center

Resources and information for parents of children with cancer . . . by parents of children with cancer. Resources and info for parents by parents. Find links for family support; info on pediatric cancers; treatment issues; survivor-ship issues; grief. There are childhood cancer personal web pages and sites with kids with cancer stories. Great info on ALL.

WWW.ACOR.ORG/PED-ONC

 

The American Childhood Cancer Organization

Because Kids Cant Fight Cancer Alone

Formerly Candlelighters Childhood Cancer Foundation, American Childhood Cancer Organization has many resources and links for families with a child diagnosed with cancer.

WWW.ACCO.ORG